How to Register

Welcome to the Gorlin Syndrome Alliance Natural History Study (NHS)!

We’re so glad you’ve joined us to take part in this important effort to advance understanding and improve treatments for Gorlin syndrome through your patient journey and lived experiences. We’ve made registration and enrollment as easy as possible, and this user guide was created especially to help you along the way. If you have any questions or need assistance, you can reach the NHS Director directly by clicking here. Please don’t hesitate to reach out—we’re here to help every step of the way.