Gorlin Syndrome Alliance Natural History Study

Sponsor

Gorlin Syndrome Alliance
3005 S. Lamar Blvd. Suite D109 #264
Austin, TX 78704
www.gorlinsyndrome.org

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Registry Contact

Jean R. Pickford
registry@gorlinsyndrome.org
267.689.6443

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Institutional Review Board (IRB)

North Star Review Board
learningirb.org

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Social Media & Newsletter

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An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org.

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Visit the National Organization for Rare Disorders home page at rarediseases.org.