We are pleased to announce the launch of Gorlin Syndrome Natural History Study!

The mission of the Gorlin Syndrome Alliance is to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome. We are committed to providing helpful resources along every step of the patient journey. A key part of our work is the Gorlin Syndrome Alliance Natural History Study (NHS), an important research tool that collects patient experiences to help improve understanding, treatments, and care.

Visit our website to explore educational materials, guidance, and support tools designed for the Gorlin syndrome patient community.

Stay informed about the latest news, events, and research updates by signing up for our e-newsletter.

Discover ways to make an impact by visiting our Get Involved page at https://gorlinsyndrome.org/get-involved/.

Together, we can raise awareness, support research, and improve care for everyone affected by Gorlin syndrome.